I was under the impression that the radiation would be definite, and before any other treatments, but again, they're waiting for the Oncotype DX results.
If I need chemo, this group likes to do it before radiation. We won't know whether chemo is advised until ... guess what. And that might be another week. Or two. Or more.
Side effects include severe bone pain, joint pain, weight gain, insomnia, spontaneous bone fractures, headaches, ... to list a few.
But really, I'd rather not have to find out.
The worst part is that you will be on this poison for YEARS!
You know all those women who go off to Europe or Mexico, or to fringe nutritionists, to get alternative treatments? Now I know why. Sometimes the price of continuing to breathe just is just too high.
My theory is that everyone "has cancer" multiple times in their lives. A cell somewhere goes rogue and doesn't behave as it should. But the immune system recognizes it as "not mine" and kills it and its progeny very quickly, and you never knew it was there. Only when the immune system does not recognize that there's something wrong, when the rogue cells somehow escape detection, does the person "Have Cancer".
Right now we attempt to excise and kill off rogue cells with poisons. It's all we've got. But in doing so, we also damage the immune system. That seems counter intuitive.
It seems to me that we should perhaps be looking closely at what allows the rogues to escape detection, and attack that. Looking at how to energize and direct the immune system. (That's the clinical trial Jay was enrolled in, and it was sort of crudely working when he died, but it was so experimental that he wasn't allowed to enroll until he was so damaged by all his earlier treatments that his organs simply gave up. He couldn't survive long enough to see success.)
So it bothers me a little bit that all the treatments planned for me are concentrating on the precise characteristics of THIS tumor. It has been excised, wide excision with clean margins, and there has been no signs of metastasis. Maybe we should ask why the immune system didn't detect it, and fix that? Why do we assume that a recurrence would be the same tumor (progeny, escaped cells), and not a brand new tumor with different characteristics? If this tumor is estrogen positive, then it makes sense for an estrogen blocker to prevent the growth of "children" of this tumor (although from what they're saying, there shouldn't be any), but why do we assume all future tumors would follow the same rules? If they're thinking I could throw another tumor in this or the other breast, maybe we should look at why tumors got started in the first place, and why the immune system missed it, and attack that issue instead?
I'm just wondering.